boing boing — Press — Dr. Jimmy Lin

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Contest to improve research of rare diseases

I met Jimmy Lin last year at TED. He's a research instructor at Washington University in St. Louis and founder of the Rare Genomics Institute, a "non-profit that makes cutting edge research technologies and experts accessible to rare disease patients." Today, Jimmy announced a rare disease competition for the best research proposal.

Jimmy LinOctober 16, 2012boing boing

Crowdfunding rare disease research – one family at a time

Using RGI’s crowdfunding platform, Maya’s family sought to raise the amount needed. The response was overwhelming. Within 6 hours, donors from all over the US gave to their cause in small amounts of $5 - $50 to raise the funds necessary for whole exome sequencing. With the funding available, the scientists were able to start the research study.

Jimmy LinJuly 18, 2012boing boing